We Haven't posted in a while

Things here have been going pretty status quo.  Naomi finally got a new aide who is great and school has been going much better.  She loves riding in the van to school and encourages it to move when it stops by making noise. At school there has been less crying, less sleeping.  More cooperation with working with her therapists.  She even (begrudginly) made a hat.

Otherwise Naomi has been adjusting to the diet the doctors in Pittsburgh put her on.  She eats much better now probably because she is getting 25% less calories a day.  We have not seen any dramatic changes in her physique yet.  She is still a pretty big girl. 

We had a nice Saint Patrick's day and ate corned beef and cabbage (well Naomi had her fruit tubs).

We have tried new hairstyles...

And Anne knitted a bright Spring sweater

Hope everyone has a nice Easter

shapes video

We took Naomi to Children's Hospital of Pittsburgh where there is a new doctor studying rare neurologic diseases.  She had a comprehensive evaluation with hearing, speech/cognition, and physical therapy.  She scored  in the 3-5 month old range and didn't do any of the amazing things that she can do at home so we are making videos to send to them and will also post them here.  This one is her doing shapes.  Notice that she only chooses wrong when we make her do two in a row.

Riding The Bus

Last week Naomi started riding the bus to school.  The bus is a wheelchair van that comes to our front door.  Her new aid who is very nice comes to our house and we get her loaded in her wheelchair stroller and she gets strapped in tight.  The aid climbs in and off to school they go.  The first day Naomi cried on the bus but perked up at school and was giggly the whole time.  Anne road the bus the second day because her aid couldn't make it.  The third day Naomi laughed and laughed on the bus.  She is such a good girl.  Here are some pictures and a silly video of pure joy.

Getting excited for school

Getting loaded

Strap me in tight!

Ready to go!

School is exhausting!