Loving Naomi Kathleen

Monday, July 2, 2012

Kicking in the pool


Posted by Anne Caughey at 3:41 AM No comments:
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This blog will allow us to share our experiences living with our daughter's diagnosis of Batten's Disease (CLN5), a fatal neurodegenerative disease, and also a POLG1 mitochondrial dysfunction. We will also share stories about Naomi, anecdotes, incidents from our daily lives, and any insights we gain through this process.

The Naomi Kathleen Caughey Foundation

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Anne Caughey
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